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Friday, June 17, 2011

The Time to Act is Now: June 19-25 is PKD Awareness Week

US Senate Resolution 205 championed by Senators Herb Kohl and Orinn Hatch designated the week of June 19 to 25 as PKD Awareness Week to increase awareness of PKD especially among Congress and to spread the message that there is urgent need for treatments and a cure.

You could take action and play an active role by writing your Senators and Representatives if you are a US Citizen. You can compose your message with the help of the PKD Advocacy Network.

Priorities for this year as enumerated by the PKD Foundation include:
    


If you are a Non-US Citizen, then I am here to inform you that there is such a hereditary disease called polycystic kidney disease (PKD) and it may be under-reported in your country because of poor awareness. PKD may manifest as elevated blood pressure in the young, recurrent urinary tract infection, hematuria, kidney stones, flank pains just to name some manifestations.

PKD is a difficult disease to have but there is still life after PKD and there is hope if only we could help make other people aware so that there would be more researches toward a cure.

If you have PKD or have a relative with PKD then maybe we can have a network here and share experiences and learn from them. Let us support each other and our friends.



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