tag:blogger.com,1999:blog-4462656372282944399.comments2022-03-24T05:30:19.213-07:00Even with PKD, Life Goes Oncebumdhttp://www.blogger.com/profile/04770663830004684117noreply@blogger.comBlogger56125tag:blogger.com,1999:blog-4462656372282944399.post-51385724704612409492016-06-01T20:18:49.521-07:002016-06-01T20:18:49.521-07:00my wife is a hemodialysis patient employed in a go...my wife is a hemodialysis patient employed in a government agency in charge of cooperative development in the country. last monday during their convocation the director of the agency in an honest and direct declaration said that all he need are two employees of her caliber to run the regional office efficiently. A confirmation that hemodialysis patients are not burdens but assets to the government. She started HD treatment last June 17, 2015..So please whoever is in-charge of providing free additional HD sessions to these patients kindly extend this benefit to them..Anonymoushttps://www.blogger.com/profile/02208469763612757271noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-35925388627774007862015-01-27T21:06:57.846-08:002015-01-27T21:06:57.846-08:00today, january 28, 2015... nirefer na kmi ng mom k...today, january 28, 2015... nirefer na kmi ng mom ko sa nkti... my mom is diagnose with ckd 2 and i know this would be a financial struggle for us, sana makakuha din kmi ng assistance sa pcso...Anonymoushttps://www.blogger.com/profile/06599599643127762972noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-67907940951812207572014-11-18T22:49:57.224-08:002014-11-18T22:49:57.224-08:00life goes on.. :) JC here.. dialysis patient too....life goes on.. :) JC here.. dialysis patient too. 26 years old. 4 years now on dialysis.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-28489226752495661452014-06-25T21:05:31.602-07:002014-06-25T21:05:31.602-07:00Congrats and God bless on your new journey doc!Congrats and God bless on your new journey doc!Anonymoushttps://www.blogger.com/profile/03334704455255168270noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-56539674126019577332014-06-01T19:23:32.775-07:002014-06-01T19:23:32.775-07:00I am also a hemodialysis patient and I will be 2 y...I am also a hemodialysis patient and I will be 2 yrs. old undergoing the treatment this June of 2014. Just like you or with other HD patients I had also my ups and downs, I went through denial stage and depression. I was even brought back and forth to the hospital as if I was always checked in at a hotel due to blood transfussion.<br /><br /><br /><br /><br /><br /><br /><br />I had my first dialysis last August of 2011 due to pneumonia it was an emergency because my lungs accumulated so much water and it lasted for 6 hrs., since then my doctor advised me to have an av fistula because my kidneys was affected due to pneumonia. I was not able to use it for nine months and I thought I was alrdady safe but on June of 2012 I was rushed to the hospital because it was my heart that accumulated water and there was no other way to reverse it but start undergoing HD. ater a year I had a mild stroke and that really depressed me because all my finances went down the drain. Before I was 84 kilos then I trimmed down to 59 kilos. But it was this January of 2014 that I started picking up my broken pieces and started to maintain my composure. I started to work out in my gym with clearance from my doctor as long as the weights i carry is minimaland now i don't feel like an HD patient.<br /><br />I still have many anecdotes to share which might enlighten or touch our fellow HD patients and I would like to join a group or even having to put up a foundation in which will cater to HD patients needs. My e-mail is aalpapara28@gmail.com.<br /><br />My first encounter with dialysis was in August 2011 and it was an emergency due to pneumonia. Although all of us HD patients are undergoing the same treatment but our cases which led us through this journey are different. Other cases are due to complication of dibetes, hypertension others have deteriorating kidney like it becomes smaller or it's protein is wasted and not being distributed properly.Anonymoushttps://www.blogger.com/profile/08753019007086040546noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-81000719465482407932014-03-02T21:08:48.272-08:002014-03-02T21:08:48.272-08:00hi what are 'body requirements' for a dono...hi what are 'body requirements' for a donor aside from compatible blood type? is obesity a no-no? Anonymoushttps://www.blogger.com/profile/04080903708660510445noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-40448516657232372442014-02-28T15:12:33.970-08:002014-02-28T15:12:33.970-08:00I am the current chairman of the Bohol Association...I am the current chairman of the Bohol Association of Hemodialysis Patients and Watchers(BOASHEPAWA) and I am glad to read your letter to our President.regarding additional free dialysis sessions with PHILHEALTH. Actually, we also wrote our congressmen, Health Secretary Ona and Sec. Butch Abad regarding this. Hopefully our concerted effort will eventually convince the government and approve our request. We are all for your cause.bellesez.blogspot.comhttps://www.blogger.com/profile/01812918761099251756noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-47069588408380394732014-02-06T16:51:24.086-08:002014-02-06T16:51:24.086-08:00If you are a Filipino PKD patient, you can also jo...If you are a Filipino PKD patient, you can also join here at https://www.facebook.com/groups/filipinopkd/ There are also many PKD support groups in Facebook.cebumdhttps://www.blogger.com/profile/04770663830004684117noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-52823944714384230672014-02-04T22:15:07.277-08:002014-02-04T22:15:07.277-08:00Hi po. My husband has just been diagnosed of PKD l...Hi po. My husband has just been diagnosed of PKD last January 28, 2014. I really wanted to join the support group for PKD because I want to help my husband. We have a 5 year old son and we are praying to God that he will continue to grow a healthy boy. I am praying also that a PKD Foundation will have a chapter here in the Philippines. Vonhttps://www.blogger.com/profile/07749753046598666061noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-91799257131085825412014-02-04T22:10:29.884-08:002014-02-04T22:10:29.884-08:00Hi po. My husband has been diagnosed of PKD last J...Hi po. My husband has been diagnosed of PKD last January 28, 2014. I want to join the support group for PKD patients. We have a 5 year old son and I'm praying to the Lord that he has not inherited PKD. Vonhttps://www.blogger.com/profile/07749753046598666061noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-31167388881964856632013-05-22T09:22:31.332-07:002013-05-22T09:22:31.332-07:00Yey! Buti nadocument mo yung event! Hehe!Yey! Buti nadocument mo yung event! Hehe!Ardee Aramhttps://www.blogger.com/profile/17827989624237419415noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-57200097807990309032013-05-22T09:21:00.994-07:002013-05-22T09:21:00.994-07:00Hello Buboy! Just stumbled upon your blog while ch...Hello Buboy! Just stumbled upon your blog while checking the google ranking of my pages hehe! How are you? Hope everything is great!Ardee Aramhttps://www.blogger.com/profile/17827989624237419415noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-83840870498847376002013-04-20T22:50:20.113-07:002013-04-20T22:50:20.113-07:00My first donor (my wife) failed. A new donor is be...My first donor (my wife) failed. A new donor is being tested and I am waiting for results. Meanwhile on dialysis. Hope you are OK too. You also have my prayers.cebumdhttps://www.blogger.com/profile/04770663830004684117noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-62481811926084347582013-04-20T19:15:26.165-07:002013-04-20T19:15:26.165-07:00hi, i'm currently on vacation in our country. ...hi, i'm currently on vacation in our country. yes phil health helped a lot. i'm using it now.<br /><br />were you able to underwent a transplant? how did it go?<br /><br />praying for you and hoping for the best.sleeplesshttps://www.blogger.com/profile/00977812275569670527noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-9640308566373474222013-03-22T17:46:36.892-07:002013-03-22T17:46:36.892-07:00Heto ang guidelines ng philhealth ukol sa transpla...Heto ang guidelines ng philhealth ukol sa transplant z package http://www.philhealth.gov.ph/circulars/2012/circ30_2012.pdf<br /><br />Parang 3 months contribution lang ata kelangan based sa pdf document. Pero nalilito ako kasi sa ibang kaso, payment of at least 9 months gaya ng nakalagay dito sa FAQ nila http://www.philhealth.gov.ph/members/individually_paying/faqs.html<br /><br />It would be best to ask Philhealth mismo. Sa bawat hospital ngayon ay may help desk na ang philhealth sa aking pagkakaalam or you may contact them here http://www.philhealth.gov.ph/about_us/map/regional.htm<br /><br />Hope I was able to help.cebumdhttps://www.blogger.com/profile/04770663830004684117noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-8839180889764394732013-03-22T11:08:02.947-07:002013-03-22T11:08:02.947-07:00hello po,, kamusta na po ang lagay nyo. i hope ok ...hello po,, kamusta na po ang lagay nyo. i hope ok naman po.. same case din po ang husband ko.. pero dpo xa member ng philhealth. tanong ko lng po sana pag nagpa member po ba xa at nakapagbayad ng six months contribution makaka avail din po ba xa ng packge para sa kidney transplant? pls reply pomharlynhttps://www.blogger.com/profile/05828660888173943111noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-48583338345190108312013-03-16T23:11:10.910-07:002013-03-16T23:11:10.910-07:00My wife is my prospective donor. You should have a...My wife is my prospective donor. You should have a good chance of finding a donor because Type O+ is most common. I was only able to afford dialysis because of Philhealth. And without Philhealth, I will not able to have this chance for kidney transplant. Do not lose hope. We will pray for each other. I have gone through many challenges lately: Bacterial infection, oral thrush and now a bad allergy. But I am not losing hope as I am already near my goal.cebumdhttps://www.blogger.com/profile/04770663830004684117noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-82907257952020689752013-03-16T14:05:52.542-07:002013-03-16T14:05:52.542-07:00hi, have you already found a donor?
i'm curre...hi, have you already found a donor?<br /><br />i'm currently on hemodialysis and also looking. my blood type is O+ i hope we both can find a donor.<br /><br />you're luckier than me since you are in the Philippines and can afford dialysis. i work in the middle east and the only reason i am able to have a regular hemodialysis is because the cost is handled by the company insurance.sleeplesshttps://www.blogger.com/profile/00977812275569670527noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-91249866025105515972013-02-15T07:29:22.537-08:002013-02-15T07:29:22.537-08:00That is one heck of a list! I hope this plea will ...That is one heck of a list! I hope this plea will reach ears that can help spur action. :(Anonymoushttps://www.blogger.com/profile/12484194040868094874noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-19487618939065302892013-01-21T22:14:59.205-08:002013-01-21T22:14:59.205-08:00It is the most required webinar, because nowadays ...It is the most required webinar, because nowadays people above 45 easily get affected due to cardiovascular problems. Let this help them to learn more about it. <a href="http://www.santeglobal.com/" rel="nofollow">L-Arginine</a><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-30952580679475103652012-12-20T06:53:26.817-08:002012-12-20T06:53:26.817-08:00I do not own this support group but you can join t...I do not own this support group but you can join there. Just go to http://www.dailystrength.org/ and in the searchbox type "polycystic kidney disease". Be a member there (you can sign in thru facebook) and share experiences with us and the others there.cebumdhttps://www.blogger.com/profile/04770663830004684117noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-73061036903238137192012-12-19T22:56:27.789-08:002012-12-19T22:56:27.789-08:00I do have PKD, how do I join your support group?I do have PKD, how do I join your support group?Almer Dhttps://www.blogger.com/profile/08279153199185869365noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-64760893979066996442012-10-12T23:02:06.651-07:002012-10-12T23:02:06.651-07:00I like all details that you provide in your articl...I like all details that you provide in your articles. <br /><a href="http://renalcalculi.net/" rel="nofollow">www.renalcalculi.net</a><br />Anonymoushttps://www.blogger.com/profile/06742783025169751669noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-6343640567036936072012-05-20T20:03:25.821-07:002012-05-20T20:03:25.821-07:00Hi Buboy. I am so happy that you are enjoying the ...Hi Buboy. I am so happy that you are enjoying the camp. Can't wait for Manila to start!Janette Toralhttps://www.blogger.com/profile/04446831361930542916noreply@blogger.comtag:blogger.com,1999:blog-4462656372282944399.post-152001188038585592012-05-01T15:18:36.049-07:002012-05-01T15:18:36.049-07:00Goodluck to all bloggers especially to cebu blogge...Goodluck to all bloggers especially to cebu bloggers!Jomar Liponhttps://www.blogger.com/profile/00559187465563021281noreply@blogger.com