The running sport is enjoying its peak in popularity in the Philippines so that a Run for PKD like that in the US would have been nice to have here. Unfortunately, the PKD Foundation has no chapter in the Philippines yet. Awareness is really still poor unfortunately. I don't know of any online community of Filipinos with PKD and I would love to communicate also with Filipino PKD patients.
Consider yourselves lucky there in the United States. PKD groups are very active and fund-raising activities are done left and right. Therefore I am inviting other PKD patients and their friends and relatives to support the Run for PKD activities near you. 80% of every dollar raised goes to patient education and research.
To my friends and classmates in the Philippines who are now there in the United States, you may want to have a good exercise keeping up with your friends back home and help PKD patients like us.
For more information, go to the Run for PKD page.