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Monday, April 12, 2010

A face for PKD in the Philippines


It's almost a month now since former Philippine Budget secretary Emilia Boncodin passed away. She was widely respected as a good, honest and dedicated public servant, a model of professionalism and integrity which seems to be a rarity in Philippine government nowadays. I just learned she was a PKD patient.

Below is a link to an ABS-CBN report on Boncodin's demise.

Her life may be relatively short but she lived a full and fruitful life. Despite her condition, she continued to work. A good role model indeed for me and other PKD patients.

I just hope that her death could be a spark to bring to light awareness on PKD. I noticed that in the Philippines, there is still little awareness on PKD perhaps even among physicians and this is despite the fact that Autosomal dominant (ADPKD) is one of the most common life-threatening genetic diseases. It affects approximately 1 in 500 and it does not skip a generation. Perhaps many other Filipinos have this condition and yet, there are no local PKD groups that I know of.

Online or offline, I do not know of any local support group. Many local PKD patients may not be aware that they have it. Or if they are aware, they are still in need of a fellow PKD patient to walk with them in their journey to give them strength.

Without a supportive and "strong" companion, the journey is hard alright.

The meds alone are heavy on the pocket. Potassium citrate to alkalinize urine and prevent stones, antihypertensives, bicarbonate, calcium carbonate, allopurinol, antibiotics to treat or prevent UTI, B vitamins and iron.

The pain in the abdomen and flanks and the other symptoms is something else....The big abdomen...and other manifestations.

However, the journey becomes easier with supportive family, friends and other PKD patients.

The journey is worth taking seeing that some had made their own journey a fruitful one.

Such is the journey made by Madame Emilia Boncodin who now joins the ranks of well-respected and beloved departed public officials like President Magsaysay or Haydee Yorac.

Emilia Boncodin is just the face of PKD that Filipino PKD patients need.

*Classmates, friends, if you know someone with PKD, please let me know. Initially, I want to start an online PKD support group if not a plain group for PKD patients to gather online. Let them leave a comment or an email to this blog.

5 comments:

  1. I do have PKD, how do I join your support group?

    ReplyDelete
    Replies
    1. I do not own this support group but you can join there. Just go to http://www.dailystrength.org/ and in the searchbox type "polycystic kidney disease". Be a member there (you can sign in thru facebook) and share experiences with us and the others there.

      Delete
  2. Hi po. My husband has been diagnosed of PKD last January 28, 2014. I want to join the support group for PKD patients. We have a 5 year old son and I'm praying to the Lord that he has not inherited PKD.

    ReplyDelete
  3. Hi po. My husband has just been diagnosed of PKD last January 28, 2014. I really wanted to join the support group for PKD because I want to help my husband. We have a 5 year old son and we are praying to God that he will continue to grow a healthy boy. I am praying also that a PKD Foundation will have a chapter here in the Philippines.

    ReplyDelete
  4. If you are a Filipino PKD patient, you can also join here at https://www.facebook.com/groups/filipinopkd/ There are also many PKD support groups in Facebook.

    ReplyDelete

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